Diabetes Care Team

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What care you should expect from your diabetes care team

 

To achieve the best possible diabetes care, you need to work together with healthcare professionals as equal members of your diabetes care team. It is essential that you understand your diabetes as well as possible so that you are an effective member of this team.

You need to discuss with your consultant or GP the roles and responsibilities of those providing your diabetes care and to identify the key members of your own diabetes care team.

Members in your diabetes care team

  • Yourself
  • Consultant physician/diabetologist
  • GP
  • Diabetes specialist nurse (DSN)
  • Practice nurse
  • Dietitian
  • Optometrist/ophthalmologist
  • Podiatrist/chiropodist
  • Psychologist
  • Other medical specialists
  • Pharmacist

You may see some members of your diabetes care team more often than others.

 

When you have just been diagnosed, your diabetes care team should:

  • Give you a full medical examination.
  • Work with you to make a programme of care which suits you and includes diabetes management goals — this may take the form of a record for you to keep (see the annual review check list).
  • Arrange for you to talk with a diabetes specialist nurse (or practice nurse) who will explain what diabetes is and discuss your individual treatment and the equipment you will need to use.
  • Arrange for you to talk with a state registered dietitian, who will want to know what you usually eat, and will give you advice on how to fit your usual diet in with your diabetes — a follow-up meeting should be arranged for more detailed advice.
  • Tell you about your diabetes and the beneficial effects of a healthy diet, exercise and good diabetes control.
  • Discuss the effects of diabetes on your job, driving, insurance, prescription charges, and if you are a driver, whether you need to inform the DVLA and your insurance company.
  • Provide you with regular and appropriate information and education, on food and footcare for example.
  • Give you information about Diabetes UK services and details of your local Diabetes UK voluntary group.

 

Once your diabetes is reasonably controlled, you should:

  • Have access to your diabetes care team at least once a year — in this session, take the opportunity to discuss how your diabetes affects you as well as your diabetes control.
  • Be able to contact any member of your diabetes care team for specialist advice, in person or by phone.
  • Have further education sessions when you are ready for them.
  • Have a formal medical annual review (see the annual review check list) once a year with a doctor experienced in diabetes.

 

On a regular basis, your diabetes care team should:

  • Provide continuity of care, ideally from the same doctors and nurses — if this is not possible, the doctors or nurses who you are seeing should be fully aware of your medical history and background.
  • Work with you to continually review your care programme, including your diabetes management goals (see the annual review check list).
  • Let you share in decisions about your treatment or care.
  • Let you manage your own diabetes in hospital after discussion with your doctor, if you are well enough to do so and that is what you wish.
  • Organise pre and post pregnancy advice, together with an obstetric hospital team, if you are planning to become or already are pregnant.
  • Encourage a career to visit with you, to keep them up to date on diabetes so that they can make informed judgments about diabetes care.
  • Encourage the support of friends, partners and/or relatives.
  • Provide you with educational sessions and appointments if you wish.
  • Give you advice on the effects of diabetes and its treatments when you are ill or taking other medication.

 

Plus

If you are treated by insulin injections you should:

  • Have frequent visits showing you how to inject, look after your insulin and syringes and dispose of sharps (needles). You should also be shown how to test your blood glucose and test for ketones and be informed what the results mean and what to do about them.
  • Be given supplies of, or a prescription for the medication and equipment you need.*
  • Discuss hypoglycaemia (hypos): when and why they may happen and how to deal with them.

 

If you are treated by tablets you should:

  • Be given instruction on blood or urine testing and have explained what the results mean and what to do about them.
  • Be given supplies of, or a prescription for the medication and equipment you need.*
  • Discuss hypoglycaemia (hypos): when and why they may happen and how to deal with them.

 

If you are treated by diet alone you should:

  • Be given instruction on blood or urine testing and have explained what the results mean and what to do about them.
  • Be given supplies of equipment you may need.

* Your hospital team will only give you your first prescription. Further prescriptions for medication, test strips, etc will be provided through your GP.

People with Type 1 diabetes and tablet controlled Type 2 diabetes are entitled to free prescriptions for medication. Equipment such as blood glucose meters and finger pricking devices normally have to be purchased, but test strips, lancets, most insulin pens and pen needles are available on prescription. Discuss this with your GP.

A prescription exemption certificate is necessary to obtain free prescriptions. Talk to your GP or diabetes specialist nurse about how to apply for one.

 

Your responsibilities

Effective diabetes care is normally achieved by team work, between you and your diabetes care team. Looking after your diabetes and changing your lifestyle to fit in with the demands of diabetes is hard work, but you’re worth it.

You will not always get your care right, none of us does, but your diabetes care team is there to support you. Ask questions and request more information especially if you are uncertain or worried about your diabetes and/or treatment. Remember the most important person in the team is you.

The following list of responsibilities is given to help you play your part in your own diabetes care.

It is your responsibility:

  • To take as much control of your diabetes on a day-to-day basis as you can. The more you know about your own diabetes, the easier this will become.
  • To learn about and practice self-care which should include dietary education, exercise and monitoring blood glucose levels.
  • To examine your feet regularly or have someone check them.
  • To know how to manage your diabetes and when to ask for help if you are ill, eg chest infection, flu or diarrhoea and vomiting.
  • To know when, where and how to contact your diabetes care team.
  • To build the diabetes advice discussed with you into your daily life.
  • To talk regularly with your diabetes care team and ask questions you may have.
  • To make a list of points to raise at appointments, if you find it helpful.
  • To attend your scheduled appointments and inform the diabetes care team if you are unable to do so.

 

Annual review check list

It is important to remember that your annual review is to enable you to lead a normal and healthy life. It must be about what you want and need as well as what healthcare professionals recommend.

The following should be checked at least once a year:

Laboratory tests and investigations

ü      Blood glucose control: an HbA1c blood test will measure your long-term blood glucose control. The range to aim for should be seven per cent or below.

ü      Kidney function: urine and blood tests to check for protein will show that your kidneys are working correctly. There should not be any protein in your urine.

ü      Blood fats (lipids, cholesterol and triglyceride levels): a blood test that measures your blood fat levels. A total cholesterol of 5.Ommol/l or less and a fasting triglyceride of 2.Ommol/l are accepted as national target ranges.*

*Please note all normal and good ranges will vary from person to person — it is meant to be a guide so you know what to aim towards. If you have any questions, ask your diabetes care team.

Physical examinations

ü      Weight is often calculated as a Body Mass Index (BMI) which expresses adult weight in relation to height. From this you will be advised if you need to lose weight to better control your diabetes. Your GP will record your BMI in your notes.

ü      Legs and feet should be examined to check your skin, circulation and nerve supply. If necessary, you should be referred to a state registered chiropodist/podiatrist.

ü      Blood pressure should be taken. You should aim for your blood pressure to be at or less than 140/80. If it is at higher levels discuss this with your doctor to discuss why your blood pressure may be high. Keeping your blood pressure down has been proven to be beneficial for people with diabetes (UKPDS research trails).

ü      Eyes should be examined regularly through a ‘fundoscopy’ review where your pupils are dilated to enable your optometrist/ophthalmologist to detect any early changes at the back of the eye (retinopathy). Photographs may be taken to record the appearance at the back of your eyes.

ü      If you’re on insulin, your injection sites should be examined.

Lifestyle issues

The review should also provide enough time to discuss:

ü      Your general wellbeing; how you are coping with your diabetes at home, work, school or college.

ü      Your current treatment.

ü      Your diabetes control, including your home monitoring results and hypos.

ü      Any problems you may be having.

It should include discussion about smoking, alcohol consumption, stress, sexual problems, physical activity and healthy eating issues. You should feel free to raise any or all of these issues with your diabetes care team.

 

Diabetes UK
The charity for people with diabetes
10 Parkway, London NW1 7AA
Telephone 020 7424 1000
Fax 020 7424 1001
Email info@diabetes.org.uk
Website www.diabetes.org.uk


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Last modified: 03-04-07